My issue with neuropathy

Hi to everyone reading this! I suppose I should share my story. Everyone is here with their own story of how they developed neuropathy [some don't know for sure]. Mine started in September '09 when I was having very strange symptoms for months before that. It felt like my arms had been stuck into a freezer. To me, it feels like a freezer burn. Initially, it was in my head, then my legs and then my arms -- sometimes in my torso. Now I mostly feel it in my arms. It comes & goes throughout the day. Sometimes when I'm lying down, I feel it in my back. My tongue is also burning; seems to be associated with it but I don't know.

I know now that my neuropathy is the result of lyme disease. I was misdiagnosed for months -- finally diagnosed in October and treated [still in treatment] but the burning symptoms remain. My B-12 levels were checked back in August and were on the low-normal side. I took B-12 supplements which did not alleviate burning. But just last week, I saw a new doctor and he gave me a B-12 injection. That seemed to make a difference for a few days. I did not have total relief, but it was not as extreme as it can be.

I do not know if anyone else out there has neuropathy due to lyme disease. I just know that I can certain sympathize with everyone who is living with this kind of pain on a daily basis. Thanks for all the support here, I really do appreciate it!

Kate