long weekend

Well everyone here goes,

 

Friday I woke up and the pain I had was so bad I started txting my husband asking him to please come home! I was hurting badly and needed to just go back to bed or something.  I knew when our son (2years old) woke up there was just no way I was going to be able to cope.  He told me he was working and had a lot to get done that day he could not come home.  I sent another message telling him that I know I have asked in the past just to see if he could come home but this time was serious.  My pain was horrible and I didnt know how I was going to get threw the day alone.  I needed him to please come home.  Again I get the answer he has to much work that has to be done.  He is inline for a pormotion in May time frame that will help our family a great deal financialy especialy with me not working and still waiting on dissability.  He has already been told he got the promotion but in the military they tell you, that your promoted and then you have to wait x amount of time b4 its offical and if you screw up or slack off you can lose your promotion.  Something we cant really afford to have happen.   So I then txt him and told him that I could not stand it anymore if he could not come home and help me I felt I needed to go to the emergency room.  We have to get preapproval for ermergency room visits unless its a threat to life limb or sight.  Well now he is starting to think wow maybe I am not getting the full feeling of what is going on via txt msg so he calls me.  I answer the phone in tears hyperventalating he tells me to take a pill (I tend to not take my pain meds when I am home alone with my son)  I told him I already did an hour ago and its not helping.  He says ok I am going to put a call into our PCM and see what we can do if she can see you or if we can go to ER and got off the phone with me.  While he did that I put a call into my Pain Management clinic wanting to know if I could increase my dosage for times like that.  My script is for 10/325 oxycodone 5 times a day most days I only take it 2x a day.  But one pill was not working so I wanted to know if I could take 2 pills and then once got the relife under control go back to 1 every 4-5 hours.  I signed a pain contract with them that I would not recive pain meds from anyone but them, I would not take more meds than prescribed and if they felt I was misusing or abusing my meds they would stop prescribing them.  And that they had the right to do random drug testing on me to get that information if they felt it was nessicary.  With my 3rd neurologist releasing me from his care 2 weeks ago I can not afford to lose my pain management doctor he is all I have left right now.  My PCM is unconfortable prescribing me narcotic pain meds on a regular basis. And my phyciatrist doesnt do that kinda meds (he is a jack ass any how only see him to get meds my phycotheripist is much better) and my kidney dr is seeing me on an as needed basis but again he has nothing to do with my pain management or neuropathy.  So I can not afford to break any rules and lose my pain managment!

 

Any how hubby calling PCM waiting on pain management to call back.  Finaly managed to get myself composed again and went on a search.  I found a rheumotalogist thinks he can help scheduled an apt 1st avaliable March 30.  Damn thats almost 2 months away what to do in the mean time.  So I went to my insucrance web site to find out about occupational theripy and see if there were any in our network in my area well NONE within 60 miles of me.  UGH just my luck so I went on to search for Physical therapist there was only 1 with in 60 miles of me.  Gave them a call and told them I had a few question b4 I wait time going threw the process of getting the refferal to see them and then getting an apt and waisting there time and mine only to find out they couldnt help I wanted to know if they could.  So I breifly and as simply explained to the woman on the other end of the line what my problems are and that it had started in the feet has been working its way up my legs as high as my knees and now has suddenly hit my hands like lead balloon.  She put me on hold and got the actual Physical theripist!!!!!!!!!  Wow never got to talk to the exper them self on the phone.  So I explained again to him what was going on he seemed to be following along pretty well so I went into more detail and he said  yes he thinks he can help me.  I should go ahead and get the refferal he would lolve the chance to solve the puzzle and looks forward to the challange.    He also says that if I get there and we start going over everything in more detail and he gets to look over me and he feels he can not help me he will tell me right out.  I told him I do not have time to be going back to a dr of any time over and over and over just because they can not admit from the begining that they havent got a clue!  All I want its truth and  fact this is a complex problem I know that and I dont expect anyone to have the answer but I hope someone can help.  So he agreeded!!!!

 

I have written a letter to my PCM nurse telling her about these 2 doctors and that I would like to see them gave her there information and asked for a refferal.  My husband is going ot be nice enough to drop it off to her for me tommrow morning.  As soon as I get the refferal I can get an apt next day with PT!!!!!!

 

Shawna