Neuropathy Support: Re: [Peripheral

I am interested in anything and everything I can get my hands on. And as for the Sarcoidosis I have seen many times that they 2 are connected in some way. I pay attention to this because my grandma had this for I belive 30 years b4 it took over her lungs and she passed away from it. Lets see what I can find! Ok below you will see 3 quote taken from 3 sites regarding neuropathy and sarcoidosis and the links. Hope it helps someone!

Shawna

"United States

Neurosarcoidosis occurs in approximately 5% of patients with sarcoidosis. Peripheral neuropathy is seen in 5-15% of those with neurosarcoidosis. In a series from Johns Hopkins University, 2 of 33 patients with neurosarcoidosis had peripheral neuropathy. Eighty-five percent of this patient population was African American and 15% was white."

Source: http://emedicine.medscape.com/article/1171907-overview

"In rare cases, sarcoidosis may affect the nervous system and cause neurological problems, including peripheral neuropathy. Granulomas may occur in the brain, spinal cord, facial nerve and optic nerve, potentially causing facial paralysis and other symptoms of nerve damage, including peripheral neuropathy."

Source: http://millercenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/sarcoidosis.shtml

"Abnormal warm and cold sensation thresholds suggestive of small-fibre neuropathy in sarcoidosis"

Source: http://www.ncbi.nlm.nih.gov/pubmed/14652091

From: brian A <buffalo1850@yahoo.com>
To: Peripheral_Neuropathy@yahoogroups.com
Sent: Sat, February 6, 2010 7:43:46 PM
Subject: Re: [Peripheral_Neuropathy] Question

I am now on Medicaid. That covers 80% of the expenses. I can not afford the supplemental insurance. I tried for Medicare, but can not get it. There is another insurance they think I can get on that would cover what medicaid does not. I will find out soon. If I am approved, I plan to investigate more on whether my Sarcoidosis could possibly be part of it. My Neurologist did not know that, I though he did, and was concerned. I want to get all the previous tests for Sarcoid, sent to him. He is an excellent doctor, he cares a lot, and tries his best.

I have a detailed letter from my doctor to my disability describing technically about me. I want to share it with you sometime, but I need to get up for work tomorrow. are any of you interested in the technical stuff he says?

Please feel free to post your Neuropathy story. Just send an email to buffalo1850. neuropathy@ blogger.com and it will automatically post to the blog.

Sincerely,

Brian A

http://neuropathy. webs.com/

http://neuropathy1850.blogspot.com/

buffalo1850@ yahoo.com

Moderator of

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy/

http://health. groups.yahoo. com/group/ Peripheral_ Neuropathy_ Sister_Group/

http://groups. yahoo.com/ group/Friends185 0/

From: Sam Franc <franc@oregonfast. net>
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Sat, February 6, 2010 8:30:41 PM
Subject: Re: [Peripheral_ Neuropathy] Question

Metanx os a prescript.
But you can buy the 3 ingredients otc.
That's what I do . it is much cheaper that way.
Sam

On 2/6/2010 5:24 PM, Theresa Schroeder wrote:

Ron,

Is the Metanx an over-the-counter product? Does it help relieve some of the tingling. I also do not typically have pain. I often, especially after wearing shoes for long periods of time, have a feeling of swelling on the ball of my foot – even though it is not swollen. My issues are primarily the tingling and other annoying feelings in my feet. If there was something that might lessen those feelings I would be willing to give it a shot. My PN is also idiopathic.

Terry S.

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